Ronald McDonald House Charities^® Southwestern Ontario About Us

The Hill Family - Oxford County

Brittany and Justin were thrilled to welcome their son, Rylan, in November of 2022. The most joyous moment of their lives quickly turned into one of the scariest.

Just hours after Rylan was born at Woodstock Hospital, he started having issues with his oxygen levels, and it was discovered that his hands and feet were fused together. After being transferred to London Children’s Hospital, Rylan was diagnosed with Apert Syndrome – a genetic disorder that causes fusion of the skull, hands and feet bones. Rylan was admitted to the NICU where he spent the first six weeks of his life.

“It was very overwhelming and scary as the diagnosis was unexpected after birth. There was a lot of information that ‘could happen’ that created its own anxiety.”

FEAR OF THE UNKNOWN

Along with the diagnosis of Apert Syndrome, came many uncertainties. Apert Syndrome varies from case-to-case. As Rylan develops and matures, symptoms can range from mild to more severe challenges like developmental delays, hearing loss, and vision loss.

Brittany and Justin have relied heavily on the Ronald McDonald House, however, the three of them have yet to stay at RMH London together. Rylan, being a November baby, the Hill Family spent their first Christmas in hospital.

“Our first stay was the hardest. RMH made our first Christmas with Rylan better, despite having to celebrate it in hospital.”

Brittany and Justin couldn’t be happier when Rylan was discharged just before the new year. It was bitter-sweet, knowing they’d be leaving Ronald McDonald House to go home.

“RMHC had a calming atmosphere, and staff were always there to help make difficult situations a little better.”

LONG ROAD AHEAD

At just two years old, Rylan has had five surgeries to date with the sixth scheduled for June. But nothing will slow him down – he loves the outdoors, swimming, and using his imagination to prepare food in his play kitchen. Rylan also has a big appetite for singing, dancing and most of all, reading. And he’s ahead of the curve. Rylan can communicate his emotions and needs by using sign language, thanks largely to his favourite book, My First Signs.

Through all the ups and downs, one thing remains a constant – RMHC is always there.

“Everyone strives to provide a caring environment as families navigate through challenging times.”